Katie 1

Katie’s Lissencephaly Page

This is the story of Katie. Katie was born with a condition known as Lissencephaly. This condition leaves Katie severely mentally and physically disabled.

This is her story………………

On the day she was born (27 August 1997) Katie spent a very quiet time inside her mum. Mum had been shopping and had noticed that her baby was unusually still. Normally baby would be kicking and moving within her, but today things were definitely different. After a few hours of this the baby moved again, mum relaxed and dropped back into her routine. A few hours went by and again the baby became still. Dad returned from work and mum mentioned the babies’ stillness. With a stethoscope, dad checked the babies’ heartbeat. – 140 beats per minute – “Sounds OK to me”Continue reading