SUPPORT

Internet Web Sites

 

  • The UK based Lissencephaly Contact Group providing contact between families in and around the UK
  • George Law’s Lissencephaly pages. (You’re already here!)
  • Children with Micro Foundation – Aimed more a Microcephaly, they have extended their arms out to many of the *cephaly related diseases.
  • The Parker Lee Project – dedicated to the memory of Parker Lee Reynolds.  Parker’s mom Megan started the Parker Lee Project to help other special needs families who were in need to otherwise expensive medical equipment.  They also take equipment donations to help pass along equipment that is no longer needed to those in need.
  • “The Lissencephaly Network” at http://lissencephaly.org. This site has been defunct for quite a while but it still may appear in google results. Thanks to the fine folks over at the Internet Way Back Machine –  Lissencephaly Network as of 2/28/2008. It looks like the site dropped off-line shortly after.
  • Got another link you would like to see here?  Please email us

 

Email Mailing Lists

Regular contact and support from others via Email.  Want to know more about mailing lists?  Click here.

 

Lissencephaly Polymicrogyria WalkerWarburg MillerDieker Subcortical Band Heterotopia Lissencephaly-Pro LissAngels
A moderated list specifically for parents or relatives of children with any type of lissencephaly. A moderated list for parents or relatives of children that have one of the many types of polymicrogyria. A moderated list for parents or relatives of children that have Walker-Warburg Syndrome or Muscle-Eye-Brain disease. An unmoderated list for Miller-Dieker syndrome An unmoderated list for Subcortical Band Heterotopia An unmoderated list open to anybody (friends, relatives, families, professionals etc) with an interest in Lissencephaly. A moderated list for parents of children that have lost a child through Lissencephaly.

 

The Lissencephaly Network Get Togethers

 

 

Friendly Email Addresses

If you want to directly contact parents who have a child with Lissencephaly in your area via Email try:

Pacific Region

Europe

North America

South America

Africa

(olafk@za.sappi.com) in Umkomaas, South Africa.

If you would like to be a contact on this list for your country, enter your details in the Feedback section.

On Line Chat

 

 

Support Groups